Parenting is not easy, there is no doubt about that. Your life is turned upside down and when a child comes into the world with special needs the obstacles become even more numerous. The most disheartening thing is when those who are closest to you, your friends and sometimes family, don't see the enormity of your situation. Every day is an uphill battle to keep your strength for your kids. However, do not forget that you are not the only one who is fighting this battle. Sharing the burden with other parents who are going through the same challenges offers a feeling of solidarity.

In this blog post, we'll explore some of the special difficulties that families face while raising a child with special needs.

1. Financial struggles

It's an undeniable reality: the financial burden of raising a child with special needs can be staggering. For many families in this situation, the constant stream of medical expenses, therapy costs, specialist college fees, and the occasional need for specialized equipment can quickly drain resources. None of these necessities come cheap, and accessing financial aid can prove to be a daunting task. Compounding the challenge are the endless piles of insurance paperwork, medical records, and test results that seem to engulf every available surface in the home, adding to the overwhelming feeling.

The financial part of raising a child with special needs requires a fine balance between government assistance and personal income. The first step is to ask for help. It is important to face the expenses directly and look for any available benefits to which you may be entitled. Nevertheless, state and federal policies can be a complicated labyrinth of rules and regulations that resemble a detective game in which you have to find the support that you think exists in the system. Nevertheless, financial aid is there, but you have to work hard to get it.

2. Sense of isolation

The sensation of isolation is all too common. Suddenly, you find yourself feeling out of place, as if being around you makes others uncomfortable. Strangers cast disapproving glances, and as challenges mount, many of your friends seem to vanish, unable to confront the difficulties of your situation.

Experiencing neglect is disheartening, but facing judgment can be downright painful. Conditions like Autism, which may not always be readily apparent to outsiders, can elicit a spectrum of reactions ranging from curiosity to outright condemnation. This is exacerbated by the reluctance of others to educate themselves. As a parent, it's vital to stand firm. You understand that misconceptions about disabilities abound, and outsiders lack the intimate knowledge of your child needed for genuine understanding. It's alright. You know what's best, and fellow parents are grappling with these same challenges. Reach out to them. You deserve true companions who stand by you through thick and thin.

3. Accessibility challenges for special needs

Regrettably, many families encounter a world that falls short of meeting their child's accessibility needs. Whether it's inadequate ramp access, a dearth of suitable toilet facilities such as Changing Places toilets, or narrow and uneven footpaths—the obstacles seem endless.

The lack of accessibility can not only isolate families but also restrict their ability to visit places they cherish. It's a formidable challenge that looms large.

4. Strains on marital relationships

Differences in how men and women cope with grief can lead to misunderstandings and conflicts. Both partners grapple with emotions like sadness, anger, and frustration, sometimes directing blame towards each other.

Prioritizing self-care and nurturing your marriage is paramount for your child's well-being. Open and honest communication during trying times can fortify your bond, potentially leading to a deeper connection. Taking proactive steps is crucial. It's easy to sideline personal needs amidst the constant battle for your child's welfare. However, safeguarding your marriage from deterioration is essential. A strong relationship provides solace and resilience to overcome any hurdles.

5. Struggles with self-doubt

Deep down, you often question if you're doing enough. Could you push harder? Are you truly giving your all? At times, an overwhelming sense of inadequacy as a parent seeps in. Balancing the demands of parenthood, spousal responsibilities, and personal well-being can leave you feeling stretched thin.

It's imperative to acknowledge your humanity. You require moments of rest, nourishment, and rejuvenation. There's a limit to what one person can accomplish. Despite feeling like you fall short, remember: your love for your child knows no bounds. You are sufficient. You're not failing.

6. Seeking empathy and understanding

Countless families encounter a lack of comprehension from others regarding the intricacies of raising a child with special needs. It could stem from a failure to grasp your child's behaviours or sensory sensitivities. Maybe it's the inability to attend social events due to environmental factors unsuitable for your child. Or perhaps it's the discomforting gaze of strangers during a meltdown in the supermarket. Empathy and understanding are invaluable and can make a world of difference. Kindness prevails.

7. Communication hurdles

For parents navigating the challenges of communication difficulties in their children, every interaction presents a hurdle. Whether grappling with selective mutism, non-verbalism, or behavioural and sensory impediments, understanding their needs becomes an ongoing puzzle.

Imagine the frustration of guessing your child's wishes for Christmas or deciphering their ailments when they fall ill. Even routine tasks like discerning their dinner preferences or understanding their school day become formidable challenges.

8. Fear of the unknown future

The spectre of the unknown future looms large, haunting parents of children with special needs. What lies ahead for your child when you're no longer there to guide them? Contemplating their adulthood brings forth a surge of apprehension, yet you hesitate to confront it until necessary. While statistics may instil fear, there are proactive measures to confront them.

Crafting a comprehensive plan can alleviate anxiety. Addressing financial concerns, such as securing resources without jeopardizing government benefits, is paramount. Seek guidance from experts to devise a strategy, ensuring your child's well-being even in your absence. Initiating this process sooner rather than later grants you the peace of mind to navigate the road ahead with confidence.

Final Thoughts 

In conclusion, beyond the unwavering affection parents provide, it's imperative to embrace and celebrate each child's individuality. Shifting the focus from their deficiencies to recognizing their unique abilities and aspirations is paramount. Embracing the present rather than fixating on an uncertain future underscores the essence of the journey alongside our children.

Acknowledging life's ever-evolving nature and the challenges it presents is essential for parents navigating the complexities of raising children with special needs. Moreover, prioritizing self-care amidst the demands of caregiving is crucial.

While aids like social stories, Makaton, 'now and next' boards, PECs, communication diaries, and passports offer assistance, communication remains an enduring obstacle for many families. Nonetheless, with resilience and support, overcoming these hurdles becomes more feasible, fostering deeper familial connections and understanding.